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I lost my first two children, the first child was miscarried, the second child died at the age of 1.5 years, due to dilated cardiomyopathy. Thanks to Puhua’s medical staff, my third child survived this condition, giving me hope to move on with my life.
A very young Patient, MEDEUBEKOVA SARA was admitted to Beijing Puhua International Hospital (BPIH) with dilated cardiomyopathy, a condition in which the heart's ability to pump blood is decreased because the heart's main pumping chamber, the left ventricle, is enlarged and weakened.
Sara was born on Apr 14th 2017. Sara’s two only other siblings unfortunately passed away. Sara’s mother miscarried the first child and the second child died at the age of 1.5 years due to dilated cardiomyopathy. Naturally when the mother learned that she was pregnant again, she was worried that the third child could suffer from the same deadly disease as did her second child. Sadly, when Sara was only 6 months, she was diagnosed with congenital heart disease and dilated cardiomyopathy. From this time on, Sara began to receive inpatient care and treatment.
During her hospitalization, Sara contracted an acute viral respiratory tract infection and was diagnosed with bronchitis, pneumonia, laryngitis and anemia. Her ejection fraction (EF) of the left ventricle was measured to be only 12%. (Normal range is 50%-70%). Additionally, severe arrhythmia was threatened her survival. The local doctor said that there is a risk of sudden cardiac death and that this could occur at any time and that a heart transplantation would be the only hope for her to live longer. The low success rate and long waiting time of a heart transplantation brought so much sorrow to the family, that her parents lost all hope until they heard that an alternative treatment for Sara was offered at BPIH.
After her admission, multiple UCG were performed, EF were all under 20%. Sara was diagnosed with grade 2 respiratory failure (inadequate alveolar ventilation leading to low oxygen and high carbon dioxide levels) and severe heart failure, which lead her to suffer from a continuous high fever and extreme fatigue. Compared to other children of comparable age, Sara’s body weight was also much lower, as this was linked to her heart condition.
Following the completion of all standard medical tests, several medical protocols for symptomatic as well as supportive treatment were applied, which included numerous medicines that were administered through IV to improve the function of her heart, help her to fight the lung infection, to provide nutrition to support her metabolism and to alleviate myocardial fibrosis.
When Sara discharged from BPIH, her EF increased from 20% to 33%. Her immune system was improved and her continuous high fever disappeared. After Sara returned home to Kazakhstan, her parents continue to stay in contact with our medical consultants to receive further guidance regarding her condition.
Sara’s condition continues to be stable and we are all pleased to see her improve and gain weight. We are positive that she will be able to live her life in a way that any normal child would.
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